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Spinal Muscular Atrophy
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Spinal Muscular Atrophy
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Baby boy is special guest for festivities 24 Nov 2005
...disease. He has been diagnosed with spinal muscular atrophy, one of the biggest killers of infants which affects one in 6,000 children. ...
- Wrexham Evening Leader,
On the map: Medfield family, SMA get national exposure 24 Nov 2005
...space. The re-build was for William Johnson, who has Spinal Muscular Atrophy, a degenerative nerve disease, and cannot use his legs. ...
- Medfield Press,
Spinal Muscular Atrophy Makeover Nov 21, 2005
EMMA'S HAS SPINAL MUSCULAR ATROPHY. ..."SMA"... ... "SPINAL MUSCULAR ATROPHY" EMMA AND NICHOLAS HAVE IT AND SO DO MORE THAN THIRTY OTHER LOCAL KIDS. ...
- WCPO,
Tripp Johnson Family on Extreme Makeover Home Edition Nov 19, 2005
...- a five-year-old with Spinal Muscular Atrophy -- and his family, on "Extreme Makeover: Home Edition," SUNDAY, NOVEMBER 20 (8:00-9:00 pm, ET) on the ABC ...
- Reality TV Magazine,
New Director Named at Commonwealth Biotechnologies, Inc.; Joseph R ... Nov 22, 2005
...of the board of FightSMA, an international nonprofit group dedicated to raising funds and awareness for research to cure spinal muscular atrophy (SMA), the ...
- Genetic Engineering News,
NationsRent Support of Extreme Makeover: Home Edition Helps ... Nov 20, 2005
Although an average family might have buckled under the pressure of battling a life-threatening spinal cord disease called Spinal Muscular Atrophy (SMA), the ...
- Business Wire (press release),
Curis Reports Third Quarter 2005 Results Nov 14, 2005
Gross revenues generated under our ongoing collaborations with Genentech and Wyeth (NYSE: WYE) and our grant from the Spinal Muscular Atrophy Foundation were ...
- Genetic Engineering News,
Curis Third-Quarter Loss Narrows Nov 14, 2005
The growth mostly came from increased funding by Genentech Inc., Procter & Gamble Co. and a grant from the Spinal Muscular Atrophy Foundation. ...
- MSN Money
Pound For Pound, A Great Tale Nov 16, 2005
Tel Aviv. When he was a baby, Ankilewitz was diagnosed with a rare form of muscular dystrophy, spinal muscular atrophy. A doctor ...
- New York Jewish Week,
Yard sale boasts Sox star Oct 27, 2005
...from his autographs and auction, along with the Johnsons' sale of their lifelong belongings, will all benefit Families of Spinal Muscular Atrophy, a non-profit ...
- Medfield Press,
Refugees' dream of life in US fading Nov 17, 2005
Trisha, whose father is Vietnamese and her mother Filipino, cannot stand or walk. She has spinal muscular atrophy and cannot get treatment in the Philippines. ...
- San Jose Mercury News,
Weekend TV highlights Nov 19, 2005
Makeover: Home Edition� – Players from the Boston Red Sox help the team remodel the home of a family whose 5-year-old son has spinal muscular atrophy. ...
- Fort Wayne Journal Gazette,
Local Residents Get 'Extreme Home Makeover' Nov 18, 2005
The family was chosen because William, confined to a motorized scooter because he suffers from spinal muscular atrophy, had additional limitations imposed on ...
- Boston Channel.com,
Redlands lighting company helps with episode of Extreme Makeover' Nov 18, 2005
Nightscaping, an outdoor lighting company that has operated in Redlands sinced 1959, pitched in to help a boy born with spinal muscular atrophy for an episode ...
- Redlands Daily Facts,
We must save all hospice beds Nov 17, 2005
But at nine weeks doctors delivered the devastating news that she suffered from spinal muscular atrophy - a rare and incurable condition which meant the nerves ...
- Norwich Evening News,
Access gives a young boy a better shot at normalcy Nov 17, 2005
As a baby, he was diagnosed with spinal muscular atrophy, a genetic motor-neuron disease that has so severely weakened his muscles that he uses a wheelchair. ...
- Boston Globe,
Home improvement on television - week of 11/18/2005 Nov 17, 2005
ABC, 8 pm: Players from the Boston Red Sox help the makeover team remodel the home of the Johnsons, whose 5-year-old son Will has spinal muscular atrophy. ...
- North County Times,
Many help ill baby’s family Nov 16, 2005
...money,� Guy said. In July, Lily Petersen was diagnosed with spinal muscular atrophy, a genetic, degenerative disorder. Doctors told ...
- Billings Gazette,
'Wishes' fund to pay future bills Nov 9, 2005
...foundation to help the Johnson family add a ramp to their home and make it more handicapped-accessible for William, who has Spinal Muscular Atrophy, a genetic ...
- Medfield Press,
Editorial: Medfield pitches in Oct 27, 2005
...sagging timbers. Heidi and Tripp Johnson's five-year-old son William has Spinal Muscular Atrophy, a degenerative nerve disease. The ...
- Medfield Press,
Schillings boost fundraiser Nov 3, 2005
The rarer the autograph, the more valuable - except to Jim Gadreau, president of Families of Spinal Muscular Atrophy, who happily watched hundreds line up to ...
- Medfield Press,
Dan Abril proves you can 'keep your head up' Oct 27, 2005
...wrong. "I was diagnosed with Spinal Muscular Atrophy, a neuro-muscular disease that, basically, is terminal," Abril said. "They ...
- Chaffey Breeze (subscription),
Diamond aces gives gems, time to friends' charity yard sale Oct 26, 2005
...when his neighbors, Heidi and Tripp Johnson, sell 20,000 pounds of their lifelong possessions to raise some dough for Families of Spinal Muscular Atrophy. ...
- Boston Herald,
Schilling Helps Raise Money To Benefit SMA Oct 29, 2005
...family. William Johnson, who is 5 years old, was born with an incurable neuromuscular disease called spinal muscular atrophy. Think ...
- CBS4Boston,
Lititz woman fights for right to state-funded care Oct 29, 2005
LANCASTER COUNTY, PA - Because Linzey Zoccola has spinal muscular atrophy, she relies on trained nurses to keep her healthy and breathing properly. ...
- Lancaster Newspapers,
WHEELCHAIR BOOSTS TEENAGER'S INDEPENDENCE Oct 26, 2005
Amy Dunne, who has spinal muscular atrophy, a severe muscle-weakening condition, said the state-of-the-art wheelchair, which was donated by the Somerfield ...
- Community Newswire,
Family raise cash for tragic baby Nov 9, 2005
...life. Baby Maddison Porter died aged just six months after being born with the debilitating disease spinal muscular atrophy. Her ...
- Barking and Dagenham Post,
Kids With Chronic Illnesses At Risk For Flu Complications Nov 1, 2005
Hospital of Philadelphia. "Neuromuscular diseases include conditions like muscular dystrophy or spinal muscular atrophy.". The study ...
- KTVU.com,
Student thrives on a busy life Nov 3, 2005
The Star. Belden, 16, Carmel, has spinal muscular atrophy, a form of muscular dystrophy, and uses a wheelchair to get round. "My ...
- Indianapolis Star,
Neurological Disease Raises Risk Of Complications From Flu Nov 4, 2005
The neurological and neuromuscular diseases studied include cerebral palsy, hydrocephalus, muscular dystrophies, spinal muscular atrophy and seizure disorders. ...
- Science Daily (press release)
CDC: All Children 2 And Older Should Get Flu Shot Nov 1, 2005
Neuromuscular diseases include conditions like muscular dystrophy or spinal muscular atrophy," said Dr. Ron Keren of the Children's Hospital of Philadelphia. ...
- Pittsburgh Channel.com,
Southwest Airlines Launches New NBA-Themed Specialty Airplane ... Nov 3, 2005
Cody Miller (14, Port Neches, TX) -- Cody was diagnosed with a type of Muscular Dystrophy known as Intermediate Spinal Muscular Atrophy or SMA Type 2 at the ...
- PR Newswire (press release),
THEIR OWN HOME Nov 3, 2005
...a great sense of humor Dakoda was born 61/2 years ago with spinal muscular atrophy, a genetic condition that affects his voluntary muscles. ...
- OregonLive.com,
Albany Molecular Licenses CNS Compounds To BMS Oct 24, 2005
Disorders and Stroke to provide its chemistry services in the lead optimization of target compounds for treatment spinal muscular atrophy, and, earlier this ...
- BioWorld Online (subscription),
Davio's owner expands eatery empire Oct 27, 2005
Proceeds from the event, which begins at 9 am at Old Potpurri Warehouse in Medfield, benefits Families of Spinal Muscular Atrophy, a disease that afflicts the ...
- Boston Globe,
Curt Schilling Helps Out At Local Yard Sale Oct 29, 2005
Medfield. The family is selling $20,000 pounds of things they no longer need to benefit families affected by spinal muscular atrophy. ...
- CBS4Boston,
Your Weekend Nov 3, 2005
Free admission. Call 232-7731. 6:30 pm Nov. 5, Savannah Marriott Riverfront, 100 General McIntosh Blvd. The holiday ball will benefit Spinal Muscular Atrophy. ...
- Savannah Morning News,
Morgan Kelly's Here To Fight, Fight, Fight 03 Oct 2005
Morgan has spinal muscular atrophy, a motor neuron disease that causes weakness in muscles, particularly those of the legs, shoulders, hips and back. ...
- The Ledger
Couple honors child's memory, even as they battle fatal disease Oct 2, 2005
By MICHELLE PITTMAN. PEN ARGYL -- Spinal Muscular Atrophy is the number one genetic killer of children under the age of 2. It's a ...
- The Express Times
Medfield family gets 'Extreme' gift Oct 1, 2005
...carried. Born with spinal muscular atrophy, a genetic disease that has caused his muscles to waste away, William cannot stand or walk. ...
- Boston Globe
Orbit Baby Announces Official Sponsorship of WalkSmart Sep 29, 2005
The event, which will be held in Fremont on Saturday October 1st, will raise funds for Families of Spinal Muscular Atrophy Northern California. ...
- PR Web (press release)
Walking for a cure Sep 21, 2005
Friends and family stage event to raise funds and bring to light the effects of Spinal Muscular Atrophy. By Sarah Hill, The Leader. ...
- Burbank Leader
Sisters share nerve disease; walk planned to find cure Sep 29, 2005
Lauren, 8, and Claire, 7, have spinal muscular atrophy, a disease that destroys the nerves controlling voluntary muscles used for activities such as crawling ...
- Johnson County Sun
$11,000 raised against killer disease Sep 23, 2005
Carl, who had a rare neuromuscular disease known as Spinal Muscular Atrophy, Type 1, died because his lungs had grown too weak to sustain him. ...
- Piedmonter
RoeFest adds apple dish bakeoff, classic car show Sep 28, 2005
Pancakes will be served from 7 to 10 am, and the fifth annual Run, Walk or Roll for Families of Spinal Muscular Atrophy, or FSMA, begins at 8 am. ...
- Kansas City Star
Fourth Walk & Roll for SMA is on Sept. 17 Sep 7, 2005
Spinal Muscular Atrophy (SMA). ... Spinal Muscular Atrophy is the leading genetic killer of children under the age of two. SMA weakens all the muscles in the body. ...
- Chelmsford Independent
Muscular Dystrophy Telethon Coming Up Sep 2, 2005
..."Every day they're getting closer. Spinal muscular atrophy, Molly's disease...They've already started drug trials on SMA patients.".
- WLUC-TV
Ready to ‘go national’ Sep 3, 2005
This is the way I drive.�. And he’s been able to “drive� this way for some time now. Luke’s disease, spinal muscular atrophy, is progressive. ...
- Greenwood Index Journal
Bob Kerr: The sisters who know how to live Sep 6, 2005
..."We were always holding on to things.". The diagnosis was spinal muscular atrophy. It meant a lot of long, hard therapy and a future in wheelchairs. ...
- Providence Journal (subscription)
Local MDA telethon raises $271,996 Sep 6, 2005
Brianna was diagnosed with spinal muscular atrophy before she turned 1. She relies on a feeding tube and a special motorized chair to get around. ...
- Rockford Register Star
Wyo telethon raises $163,070 Sep 6, 2005
...including nine forms of muscular dystrophy, amyotrophic lateral sclerosis (ALS, or Lou Gehrig's disease), myasthenia gravis, spinal muscular atrophy and Charcot ...
- The Casper Star Tribune
Oxford Biomedica Plc announces Interim Results Sep 19, 2005
SMN-1G is Oxford BioMedica's gene-based therapeutic for the treatment of an inherited motor neuron disease, spinal muscular atrophy (SMA). ...
- Market Wire (press release)
Morgan Fritz loves the spotlight Sep 4, 2005
..."She gets treated like a queen.". Morgan was diagnosed with spinal muscular atrophy, which causes muscle weakness, when she was 14 months old. ...
- St. Louis Post-Dispatch
Where to Watch in Dallas Sep 7, 2005
Whether it is Lou Gehrig's Disease (ALS) or Juvenile Spinal Muscular Atrophy, the list is long of diseases that fall under the category of neuromuscular ...
- albany.about.com
An Angel on Earth: St. Peters Girl Spends Year As MDA Goodwill ... Sep 2, 2005
Shortly after her first birthday, Morgan was diagnosed with Spinal Muscular Atrophy, (SMA), which causes muscles to weaken and waste away. ...
- KSDK
A to Z guide to Parade of Homes Sep 17, 2005
Construction is teaming with KFAN-AM 1130 radio and former Minnesota Viking Mike Morris to raise awareness and money for Families of Spinal Muscular Atrophy. ...
- Pioneer Press
Son's plight inspires a first for the Valley Sep 1, 2005
When Ryan, at 8 months old, was diagnosed with spinal muscular atrophy, they relied on what is considered the world's first pediatric house in Oxford, England ...
- Arizona Republic
MDA Telethon raises $54.9 million Sep 6, 2005
MDA National Goodwill Ambassador Morgan Fritz, 6, of St. Peters, Mo., who has spinal muscular atrophy, charmed the audience with her spunk and intelligence. ...
- 999 Today
Missouri City girl named Goodwill Ambassador for MDA Aug 30, 2005
Julia suffers from a neuromuscular condition known as spinal muscular atrophy (SMA), which is a genetic disease affecting the part of the nervous system that ...
- Fort Bend Southwest Sun
Big Differences In Duplicated DNA Distinguish Chimp And Human ... Sep 2, 2005
...the human-only duplications, some of those sections of the genome are implicated in human developmental disorders such as spinal muscular atrophy and Prader ...
- Science Daily (press release)
Monkey business is worth it Sep 7, 2005
...reveals differences that may reflect disease susceptibility- 33 percent of sequences duplicated in humans pertain to diseases like spinal muscular atrophy. ...
- Michigan Technological University Online Lode
Beaverdale steps out for its annual parade Sep 17, 2005
Proceeds will go to the association and Beaverdash, a walk/run that benefits spinal muscular atrophy. This year's Beaverdash is at 8 am today. ...
- DesMoinesRegister.com
The Strength Of A Little Girl Aug 29, 2005
Tessa Wilkerson has spinal muscular atrophy type two, a genetic disease in which loss of nerve cells in the spinal cord affects voluntary muscle movement. ...
- WFIE-TV
Local church members spread good will Sep 10, 2005
Mariah Nibert decided to do the former. She purchased bracelets from the Families of Spinal Muscular Atrophy to sell to raise money for the group. ...
- Tri-Valley Herald
Scientists sequence chimp genome Aug 31, 2005
...duplications found only in the human genome, some of the regions are associated with developmental disorders, including spinal muscular atrophy and Prader ...
- Monsters and Critics.com
Lindsey's Wonder31 Jul 2005
As an infant, she was diagnosed with spinal muscular atrophy, a genetic disease that causes the muscles to permanently weaken. Her two legs can't carry her. ...
- Arizona Republic
Ironton resident collects cans for charityJul 27, 2005
He said many charities are raising money for cures to various diseases such as spinal muscular atrophy, this is just one of them. ...
- Ironton Tribune
Volunteer drivers keep hospital connectedJul 28, 2005
Mathieu has spinal muscular atrophy, a disorder similar to muscular dystrophy, and is participating in a study at the children's hospital. ...
- San Jose Mercury News
Pageant selects new Ms. Wheelchair AmericaJul 23, 2005
The constituent caseworker for US Rep. James Langevin uses a wheelchair because of spinal muscular atrophy, a form of muscular dystrophy. ...
- Newsday
Pageant Picks New Ms. Wheelchair AmericaJul 24, 2005
Connors, who uses a wheelchair because of spinal muscular atrophy, a form of muscular dystrophy, works for Democratic US Rep. James Langevin. ...
- Guardian Unlimited
Pageant end controvery, picks new Ms. Wheelchair AmericaJul 24, 2005
By Jim McKnight, AP. Connors, who uses a wheelchair because of spinal muscular atrophy, a form of muscular dystrophy, works for Democratic US Rep. ...
- USA Today
All the bestJul 24, 2005
Connors, who uses a wheelchair because of spinal muscular atrophy, which is a form of muscular dystrophy, works for Rhode Island congressman James Langevin. ...
- Boston Globe
Pageant selects new Ms. Wheelchair AmericaJul 23, 2005
...about disability issues. Connors uses a wheelchair because of spinal muscular atrophy, a form of muscular dystrophy. The pageant ...
- WSTM-TV
ADA stories: Karen FoxgloverJul 25, 2005
Foxglover uses a wheelchair because of spinal muscular atrophy - a form of muscular dystrophy - and normally would get to a favorite restaurant on the second ...
- Wisconsin State Journal
Family plans van fundraiser to benefit ailing childJul 26, 2005
Corey was born with spinal muscular atrophy, a disease that affects the voluntary muscles that control walking, swallowing and head and neck control. ...
- Poughkeepsie Journal
Committee for Orphan Medicinal Products July 2005 MeetingJul 22, 2005
Sodium valproate, from the Jennifer Trust for Spinal Muscular Atrophy, for treatment of 5q spinal muscular atrophy (review time: 32 days). ...
- PharmaLive.com
Cary Boy Refuses To Let Genetic Disease Control His LifeJul 15, 2005
RALEIGH, NC -- Spinal muscular atrophy (SMA) is rare. One in 6,000 babies are born with it. Researchers have identified the gene ...
- WRAL.com
Albany Molecular Research, Inc., NINDS Target Neuromuscular ...Jul 11, 2005
...with the National Institute of Neurological Disorders and Stroke (NINDS) aimed at developing novel treatments for spinal muscular atrophy, a degenerative ...
- Business Wire
AssistiveWare Updates AboundJul 15, 2005
...quadriplegic due to an accident, or suffering from neuromotor disabilities such as Amyotrophic Lateral Sclerosis (ALS), Spinal Muscular Atrophy (SMA) or ...
- Inside Mac Games
Oxford Biomedica is Granted Key Lentivector® Patents in ChinaJul 10, 2005
...neurotherapy pipeline, including products for Parkinson's disease, age-related macular degeneration, motor neuron disease, spinal muscular atrophy and nerve ...
- Medical News Today
Rose Hulman Students Give BackJul 11, 2005
Marshall, Illinois. Hannah suffers from spinal muscular atrophy, a degenerative disorder that weakens voluntary muscles. Unable ...
- WTHI
MARIO BARTEL/NEWSLEADERJul 8, 2005
...settling in Queensborough. Canadian doctors had a different diagnosis - spinal muscular atrophy, which is genetic. Langston met ...
- Burnaby Newsleader
Manufacturer gets grantJul 1, 2005
They started by creating Jonathan’s Dream, a West Hartford playground honoring their infant son, Jonathan, who died of spinal muscular atrophy, a rare ...
- Bristol Press
Under sunny skies and with family fetes, Boardman marks its...Jul 3, 2005
...principal of Stadium Drive Elementary School, set out from Columbus as a way to raise awareness and money for research for spinal muscular atrophy, a genetic ...
- Youngstown Vindicator
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Spinal Muscular Atrophy
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